With all due respect, 130K isn't bad. It may be perfectly normal for you. I live with platelets at 19k which slip down to 1k when I get sick.
I honestly wouldn't worry about 130k. If you stay at that count, you are indeed blessed and can live a perfectly normal life, including sky-diving!
Be sure you have enough vitamin K (for clotting) and are eating healthy so your body has what it needs to make all it's hormones and the ability to heal. However vitamin K is fat soluble which means you can take too much. It doesn't pee out, so only take the recommended dose. You will read all kinds of people saying that "this food" raised my platelets, or "eat that", but really...if ITP is caused by a virus (very probable), then eating Oreos (Yes, this was one 'cure') won't help.
There are various reasons for thrombocytopenia. Most cases are called ITP. The I stands for idiopathic which means "yeah...we have no idea what causes this, why you have it or how to cure it". Just think...."idiots" (even though most docs are brilliant people who really do have our best interest at heart).
Depending on your symptoms, I can tell you from experience, that you shouldn't need to take any meds until you get below 20k. I, personally, am not taking any meds now at 19k and I ride horses daily and show in competitive dressage, but I have no symptoms, no bleeding or bruising issues. Even when I got down to 1k, I still never had any symptoms.
If you are below 40k and need surgery, you may need to take prednisone or dexamethasone to raise your platelets for a few weeks to heal faster. I could get into why, but I doubt it will apply to this situation.
Also, NEVER let anyone take your spleen out. This was an old "treatment" that doesn't work (check the efficacy reports) but is still taught in some med schools. I had my spleen removed way back when I was diagnosed (24 years ago), however, 6 years post surgery my platelets went back to the level where they were originally, but now I didn't have the ability to try all the new advanced meds which you need a spleen to take. I saw one of our top ITP specialists In NYC, Dr. Bussel, who was also disappointed to find my spleen was gone. Look him up. He's doing most of the research in this field.
Sorry for the long answer, but I wanted to also share warnings. I also recognize that I don't know all the facts surrounding your condition. So please pardon my many assumptions.
The opinions expressed here are solely those of the User.The opinions expressed here are solely those of the User.
User-generated content areas are not reviewed by a WebMD physician. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice. Please see the bottom of the page for more information or visit our Terms and Conditions.
Thanks for your feedback.
117 of 152 found this helpful