I'm sorry to hear you're dealing with this. As a plastic and reconstructive surgery nurse, I've worked with many hidradenitis patients, so I understand how painful and embarrassing it can be.
I'm afraid, in general, I don't have good news for you. Hidradenitis suppurativa
is a difficult, insidious disease. It basically is an infection of the apocrine sweat glands and only occurs where these glands are located in the skin: the armpits, groin, perineal area, perianal area, and areola (area around the nipple). Hidradenitis in not curable. In general, patients go through mild outbreaks that are treated with antibiotics or other therapies. In my experience, hidradenitis almost always recurs, however.
The only permanent solution to the problem is surgery. Surgery is usually reserved for intractable cases where the lesions won't heal and stay open and oozing for weeks or even months.
I'm not sure what your doctor is planning to inject you with. Botox (botulinum toxin) is not indicated for hidradenitis, and there's no evidence it would be useful. Botox is used to treat excessive sweating, which is called hyperhidrosis
. It's possible your doctor is planning to inject corticosteroids into the lesions because this is a fairly common treatment when the disease is in the milder stage.
In general, hidradenitis patients should focus on keeping the apocrine gland areas very clean with gentle, daily washing using an antibacterial cleanser and cleansing only with bare fingers. It's helpful to avoid any sort of skin trauma in susceptible areas, and even washing with a washcloth can possibly trigger an outbreak.
I wish you all the best with this condition.
This answer should not be considered medical advice...This answer should not be considered medical advice and should not take the place of a doctor’s visit. Please see the bottom of the page for more information or visit our Terms and Conditions.
Thanks for your feedback.
58 of 68 found this helpful