I have Mitochondrial encephalomyopathy with lactic acidosis with stroke-like episodes. AKA - MELAS. It killed my 21 year old daughter, 11 years ago- TODAY! She had a stroke- like episode, it put her in a coma , for 3 months. When she woke up, she had lost her sight, hearing, and couldn't walk , talk or eat for months. It also damaged her heart and lungs. In 1998 it was hard to determined, but now it can be Measured by percentage, in your urine and blood. It is passed within the mitochondrial of the females and only carried by the males. So your daughters will have it and pass it to their daughters , but the male children just have the gene, usually a very low percentage, but do not pass it. I have hearing loss, vision loss due to cataracts , leg cramps, fatigue , migraines, diabetes, and muscle pain. All because of MELAS. There is no cure, and no effective treatment. Watch for rapid weight loss,extreme fatigue, mood changes, joint and muscle pain, leg cramps, usually thought to be chronic fatigue or fibromyalgia. It's not! Don't stop looking until you get the correct diagnosis , I didn't but , it was too late.
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